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Welcome to my blog which is about my family and I and how we deal with what life throws at us, which includes my daughter and her disabilities related to her spina bifida and her death on December 26 2012.

Sunday 11 November 2012

been a while

I guess it has been a while since I posted on here, not that I think many people read but more an issue of time and things to blog about. 

Since my last blog, Janice turned 3 which we spent her birthday in Vernon as we normally do for the September birthdays on Kevin's side of the family. I turned 28 which was as normal around Thanksgiving. We did the two suppers thing but this year Kevin's sister Laura was in town and it was decided that we were doing a October birthday special in Vernon which was nice. 

Mostly it has been allot of work and family stuff. Janice has her wheelchair which she will be growing out of fairly quickly I think. Although Vancouver still harps about vitamin D and weight I think we have made progress, she is taking dissoluble vitamin D pills daily and Kamloops doctors seem to be happy with her weight but as normal I will keep monitoring it and hope Vancouver might actually be happy next visit.

We were down in Vancouver at the beginning of September and the only things they would say were "she needs vitamin D" and "She weighs the same as she did in June" I know they are good people but sometimes they irritate me. They wanted us down again for November 29th but after talking to her pediatrician and the nurse clinician I have staved that off as I can't afford to take the time off during the blackout period with Christmas coming nor do I want to transverse the  Coquihalla highway in November/December.

Janice has a cough again. She seems to get them 2-5 times a year. At least now with the inhalors we don't end up in the hospital each time. I don't like hearing her cough but at least she is home and comfortable with her toys and "Bears". My angel loves the Care Bears that seems to be all she wants to watch these days. We have been doing good, no tube feed since June; OK that is a lie she has had 2-3 since June but it is mainly now when she is sick that she gets them and that is because she isn't eating much. 

On that note I will turn off the computer for now and will hopefully post again soon with not so long of a gap. But I also have to post christmas lists and finish Christmas shopping as we have 3 more gifts to buy as my niece and nephews are coming down for the first Christmas since they were born. It should be a good holiday.