Welcome

Welcome to my blog which is about my family and I and how we deal with what life throws at us, which includes my daughter and her disabilities related to her spina bifida and her death on December 26 2012.

Saturday 24 March 2012

ReStart

Sunday I decided I needed a restart. I have gotten back on doing my blood sugars 2-3 times a day and I started working out a minimum of 5 minutes a day. Today I took a walk with my mother and Janice around MacArthur Island and am not sure my legs are up to doing anything else work out wise tonight. I feel kinda bad about not doing anything besides the walk but the night is still young we will see ... maybe I will do my ipod daily ab work out.

I am packed for Vancouver. We leave on Tuesday for two nights and three days. It feels like I just got back and am going down again. At least I get a month off after this. No trip in April. However I am back down in May for urology to do some test that she is finally big enough for. That trip is happening the day before my bff's wedding so it isn't going to be that bad but it is a little exhausting going down almost every month for 6 months straight.

Janice is doing good though. She caught a little cough but it is gone after a week. She has missed about two weeks of daycare this month which I am not happy about but her health comes first. Spring is here and I find that I get down in the spring because of all the sports going on and Janice won't be able to do many of them and it can be depressing. I keep trying to come up with activities that she CAN do. She has the CAN DO spirit but there are still a lot of things that she just physically can't do. But Janice is doing everything that she can and is so positive I feel extremely lucky that she is my little angel.

Saturday 3 March 2012

Everything at once

I find myself feeling overwhelmed. Janice is finally home and out of the hospital. The last few days were to get her off the oxygen. But she skateboard and in the playroom.

Then this afternoon my grandma (Popo) got an upsetting call her younger brother was on life-support and that she should come down soon. He went into the hospital about a week ago from what I was told for pnemonia and because of an underlying disease he has had all his life it became too much for his body. I have spent several hours on the computer looking up prices and calling family and trying to arrange the trip for Popo.

She is very sad as Uncle Dicky was one of her closer siblings and she loved him very much. I feel at a loss for words on what else I can say or do to help her. I wish I could take them (my grandparents) down myself but I am tapped out between the trip to Vancouver BC Children's Hospital, and the stay in Royal Inland Hospital.

I am happy that Janice is feeling better besides a residual cough. But I also feel sad about the situation and pending death of my uncle. He was an inspiration. Despite a crippling disease he never let it keep him down. He always had a smile for me and when Janice was born he looked so proud. The wheel chair never held him back from anything he wanted to do.

You will be missed Uncle Dicky. We loved you and will live forever in our hearts.