Welcome

Welcome to my blog which is about my family and I and how we deal with what life throws at us, which includes my daughter and her disabilities related to her spina bifida and her death on December 26 2012.

Sunday 22 January 2012

Differences of view

Last night I found myself feeling depressed, ugly and wondering if I was wanted. Almost crying myself to sleep between the pain of my decomposing tooth and a bout of depression. This morning I still felt down and my tooth seemed to hurt more then yesterday, I have spent the whole day taking meds and laying down bundled up kind of moping. 


Although due to my low emotion and pain my feelings from last night have been pushed down by the caring TLC that I have received. Unexpectedly I have been served lunch in bed and well couch side service.


Tonight I have a Christmas party at Ora. I hope I am feeling up to going. It is also Chinese New Years so I am hoping for Chinese. And yes Christmas party as it is the busiest time of year the party was moved to January.  I know my blogging is random but I type what is on my mind.  Last night if I was not so lazy about getting out of bed you probably would be reading a more interesting although depressing blog. 


I enjoyed watch a new show last night called "Switched at Birth". I am currently enjoying some NCIS while Janice sleeps. I love my little girl is so precious and seeing her can turn my whole day around.  Yesterday I got up early to attend a future leaders meeting, the first of twelve. It was very interesting and although I do have some homework I am hoping to get my printer working so I can type up a good copy. 


I purchased the as seen on TV "Heal-tastic" which is actually working well for a single treatment I am hoping it holds up. I am considering getting a curling iron, I saw an interesting hair accessory tool that is an "as seen on tv" 


When I was finding the as seen on TV items I also found out that when Target takes over Zellers the employees are getting laid off. That makes me wonder what is going to happen to all those employees, it makes me feel like it is another convergys. So many people out of work.  I mean there are people that leave a job for good reasons or bad reasons but by their own choice. Then there is the people that are forced to leave a job for reasons they don't control. 


I think I have said enough for today. I am going to sign off for now.

Saturday 7 January 2012

Filling in the last two years

After Janice was born and a month long stay in BC Children's hospital we returned to our home in the interior. Our two bedroom apartment became a wonderful home for our small 4 member family; Kevin, Janice, Lia (our cat) and I. Although annual visits to Vancouver for Janice every three to four months made our budget a bit short. Eventually working fast-food and taking time off for medical appointments caused us to make a big decision, November 2010 we had to move in with my grandparents.

Another problem that arose was I seemed unable to set up any play dates for Janice which made me have to consider daycare even though we didn't need the additional care, no it was for social skills for Janice. She seems to love it now after almost 9 months. Her language skills are also growing with the interaction with the other children in her day care. So with the help of my grandparents and day care 2 days a week, I am able to work a flexible schedule and Janice is flourishing.

This November I got a Christmas job working as a cashier at a retail outlet that I enjoyed the environment and climate way better than the job I took due to lack of options after maternity leave. The job I was working at when I got pregnant closed down, and my EI got eaten up with maternity leave I had to take the first thing that came my way which was fast food. However after some issues with management and their reaction to some complications with my daughter I was extatic to move on to another job that was more understanding and had more reliable hours.

I was told a week and a half ago that they were keeping me on and I was extremely happy. So now it is just a matter of getting some savings and a properly designed home for Janice to grow up in; although I am sure my grandparents don't mind us bunking here I don't like having to rely on them.

In February we have another trip to vancouver to see an endocrinologist about Janice's hormone levels. She is on the small side for her age and after over a year of being hounded about her weight they tested her hormone levels only to find that some were on the low side and thus our up coming trip.

First blog post

Welcome to my blog. I am a 27 year old mother of a 28 month old with spina bifida. She was a surprise in a lot of ways. She has become my angel of light. Janice is a very happy go lucky girl with beautiful blonde hair and blue eyes. Everyone said that her eyes would change but it was her hair that changed from brown to blonde within the first 6 months, despite my being primarily asian and native.

She has been an inspiration and a heart thief from birth. Everyone that meets her falls in love with her. When she was born we were shocked to find out that she had spina bifida and within 8 hours of her birth was flown down to BC Children's hospital. I had to wait til the following morning to follow her down. Before I had even seen her I was approached by one of her doctors and was told how they needed consent to do surgery to close up the hole in her back otherwise she could die from infection, it was one of the scariest moments of my life.
We soon were told that apart from her obvious leg malformations she also had a single horseshoe kidney, small high pressure blatter, and she had a hernia on her right side.

She did not like any of the traditional mobility devices brought in by her physio. I found a child size skateboard about 6 months ago that we have since had modified for her. She loves racing around on it. We had to put a g-tube in October 2010 and developed a bed sore on her back from being on her back after the surgery. We finally just got the bed sore cleared up.