Welcome

Welcome to my blog which is about my family and I and how we deal with what life throws at us, which includes my daughter and her disabilities related to her spina bifida and her death on December 26 2012.

Thursday 19 April 2012

Trial wheelchair

 Janice only got the chair on Tuesday and yesterday she spent almost the whole day in her chair and even fell asleep in it. Today though, I feel like such a mean mother today. We were told that the chair might have to go back but it got confirmed this morning :( 

I took Janice to try out her chair at daycare. She hadn't been there for a few weeks and so it was more crying and mommy cuddling then trying it out but the size of the chair worked well for the room. The kids were interested so that might be a problem if they try to push Janice around. Unfortunately unlike her board the chair is just for her and we don't want the kids to play with it.

We went up for a quick visit to work, although we missed meeting a friend for coffee due to unable to get a hold of said friend.

Then stopped at seating clinic, unscheduled, to mention something about the chair which is when we were told that they needed it back but would order her one. They took pictures and notes so they could get it set up properly for her. She wheeled away from them and then wanted up lol. They were just happy to see that she was comfortable using the wheelchair.  Then when we were leaving and I was carrying her she noticed no one was bringing her chair and pointed back to the room and asked, "Dah?" (basic translation - what? chair?)
I explained "Chair get fixed" Which isn't a lye but I still feel bad cause she really liked the chair and now she has to wait at least a month for "HER" Chair. :( 

But at least I know she likes it and will use it she was doing really well for only having it about 48 hours. Janice could make it go forward and backward with minimal difficulty and was learning how to turn but that was the more difficult one, I think for anyone to get the hang of. 

Hopefully they will have a chair for her soon they are aiming for our Vancouver trip in May but we will see...

Wednesday 18 April 2012

Janice's Wheelchair

Although I was anxious about Janice getting her first wheelchair. It seems it was for naught as she seems to be taking to it like a fish to water. She got it Tuesday morning and was making it move forward and backward on her own within hours.

This morning she tried a mild turn which she needed a little help when she got stuck on some toys. She spent most of the day in her chair and even fell asleep in it. I am pleasantly surprised and happy with how well she is taking to the wheelchair.

Sunday 1 April 2012

Another Death

I didn't think I would feel the death like this until I was older but this month... seems like there is a lot of death. The first week of March ended with my Uncle Dick passing away. Then my Uncle Earl isn't doing that well and this morning I got a call from my Aunt Lil that my Aunt Margarite passed away this morning.  I mean don't get me wrong they have all lived long lives and were in their 70's-90's.

I wish I understood why things happen but I guess that would take the fun out of living.
Somethings seem to just come out of the blue and other times you can see it coming from miles away.
It is sad and I feel lost and sometimes I wonder why things happen the way they do. I know this is a short blog but for some reason I seem to be out of words tonight.