Welcome

Welcome to my blog which is about my family and I and how we deal with what life throws at us, which includes my daughter and her disabilities related to her spina bifida and her death on December 26 2012.

Tuesday 28 February 2012

Royal Inland stay

It was about 11pm Sundays night when Popo called down to me to take Janice up to the hospital. It made for an exhausting night complete with blood tests, iv's, and x -rays. Although I did find out something,  the reason they never say she has pnemonia is because Janice's hernia which is intestine covers the lower part or her lung.

They did mention that they could hear something in her lungs when we were admired. Dr. Van Dyke said this morning the lungs sound clear. Janice is still on a very minimal amount of oxygen tonight and her cough still sounds congested but I am optimistic that we will be heading home either tomorrow or the day after.

She is currently sleeping contently on my cot by her choice forcing me to use her hospital bed which in my opinion more comfortable but Janice seems to prefer the cot lollipop.
I hate these hospital stays but if they keep Janice healthy that is all that matters. I feel bad for missing 2 of my 3 shifts this week. But just as long as Janice feels and gets better, that is all that matters.

Saturday 25 February 2012

Vancouver trip and looking back

Well the trip to Vancouver went well. Mom went with me.She had not been down since Janice was born. First day we arrived around 3pm got into the hotel and went to go see mom's cousin Claire's son Noah, this entailed walking from Heather street to Commercial drive. Day Two we went by bus to Oakridge Center before heading to Janice's appointment at BC Children's hospital.

It was a typical appointment, they weighed and measured her, took her blood pressure, all the usual. Dr. Dan (Metzger) found the dispute one hormone being low, but in range and her length (arm span) matched her weight; which means she is growing just fine, just at a little slow but at her own rate.

While at the appointment it came up about how because of the additional water I must have been huge. It was during this discussion that my mom mentioned that I had been bigger than she had expected even with me being diabetic and she had added that I had even been bigger than a woman carrying triplets. This discussion makes me feel like I should have done something more. I got so big so fast and there were several times I thought something was off and let people talk me into comfort. My even more clumsiness, most likely due to the additional fluid. The fact that everyone kept thinking it was multiples. Was I a bad mom for missing it? Should I have done something differently?
Since then I have been feeling inadequate.

After the appointment we went back to the hotel to drop our shopping off before heading to China town, then to gas town and the Old Spaghetti Factory for supper with the cousins on Popo's side: Mike, Mitch, and Mark. Then back to the hotel for the night and heading home early the next morning. Slow and steady was the trip as the first leg was snowing but after passing the summit it was more rain and we were home by 4pm.

Back down for March 29th.
That is all for now.

Monday 13 February 2012

Show of Hearts 2012

Well. the Variety Show of Hearts telethon was on this weekend. Although Janice wasn't on it there were alot of well deserving families and children on this year. There was a few teens that had been injured during sports that needed the help of Variety the Children's Charity. It is always amazing the things that Variety is able to do for those in need.

I have my own little "I Can" little girl. Janice shows me on a daily basis that she isn't going to let anything stop her. Whether it is going up and down stairs; booting around on her skateboard; climbing up and down the fireplace and couches; or just her optimistic smile she always makes me smile.

I was hoping this year they would get over 8 million but this year they got less then last years total. They only got about 6.753 million. Last year they got close to 7.7 if I recall correctly. Either way 6 million is still a lot of money and will help a lot of kids and families. They also told about the opening of Janeece place in Victoria. A home away from home for families getting treatment in Victoria.

Friday 10 February 2012

CFJC TV News segment

Well, my father decided to do something for his grand-daughter and sent out a dvd and letter about her and her accomplishments with her skateboard. We got a reply from the local TV station and yesterday they came by to interview us. It was cute Janice fell asleep on me during the interview and so they weren't able to get much of her playing because we had to wake her up. But the segment aired on 4 of the news casts between yesterday and today and the segment is also on their website:  http://cfjctv.com/story.php?id=7098


I find myself tearing up each time I see it. It is their lead in to the Variety Club show of Hearts which starts tomorrow evening and goes the next 23 hours.


In about a week and a half I will be heading down to vancouver to see an endocrinologist about Janice's hormone levels. Hopefully it will go better then I feel the doctors expect.